Welcome to Cystinosis United!

If you’re living with cystinosis you know it’s a lifelong journey, but you don’t have to feel like you’re alone. Here you’ll find tips, tools, and helpful advice from people who are living with cystinosis that can help you meet the challenges of living with cystinosis every day.

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Help along your cystinosis journey

Living with cystinosis presents daily challenges. These tips and tools from Horizon Therapeutics may help you meet them head on.
Get tips for everyday living

Stay connected

Get information about living with cystinosis by email.