We're Cystinosis United, and we're glad you're here

Cystinosis United is a part of a growing community of people—like you—who want to live their best lives with this rare disease. By uniting to share experiences and tips, people with cystinosis grow stronger, more confident, and better prepared to face the unique challenges of this condition.

Cystinosis United: where people living with cystinosis come together

Join our community, and we'll send information about living with cystinosis to your inbox.