We're Cystinosis United, and we're glad you're here
Cystinosis United is a part of a growing community of people—like you—who want to live their best lives with this rare disease. By uniting to share experiences and tips, people with cystinosis grow stronger, more confident, and better prepared to face the unique challenges of this condition.
What is cystinosis?
Get information about cystinosis that's easy to understand from reliable sources.